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Survey research in Wilson disease. Patient Survey: The patient-reported experience of living with Wilson disease

dataset

posted on 03.06.2021, 07:52 by Ashley Dress, Christina Theodore-Oklota, Shayna Egan, Maggie Paulich, Elliott Blatt, Christopher J. Evans

Survey Research in Wilson Disease Patient Survey

The patient-reported experience of living with Wilson Disease

Funding

Ultragenyx Pharmaceutical Inc.

History

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The patient-reported experience of living with Wilson disease

Future Rare Diseases

Categories

Other health sciences not elsewhere classified

Keywords

Wilson disease survey patient-reported rare disease ATP7B gene Medical and Health Sciences not elsewhere classified

Licence

CC BY-NC-ND 4.0

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