pme-2020-0155_suppl_material.docx (73.27 kB)
Supplementary Material: Expanded carrier in screening in Flanders (Belgium): an online survey on the perspectives of non-pregnant reproductive-aged women
dataset
posted on 2021-06-04, 15:58 authored by Van Steijvoort E, Devolder H, Geysen I, Van Epperzeel S, Peeters H, Peeraer K, Matthijs G, Borry PAbstract
Background: Despite a considerable interest in expanded carrier screening (ECS) in the general population, actual uptake of ECS remains low. More insights are needed to better understand the perspectives of reproductive-aged individuals.
Materials and methods: Non-pregnant women of reproductive age recruited through public pharmacies throughout Flanders (Belgium) were invited to participate in an online survey.
Results: Most participants (63.6%) indicated they would consider ECS for themselves in the future. About 1 in 2 participants showed a positive attitude towards ECS.
Conclusion: This study reports valuable insights in the perspectives of non-pregnant reproductive aged women in Flanders (Belgium) regarding ECS that can be used in the on-going debate on the responsible implementation of ECS.
Text A: Background information
Text B: Questionnaire
Text C Supplementary data:
Table 8: Sociodemographic Characteristics of participants
Table 9: Perceived susceptibility
Table 10: Acceptability & intention to participate in ECS
Table 11: Knowledge about ECS related concepts
Table 12: Attitudes towards ECS
Table 13: Preferences for the practical organization of a population-based ECS offer
Background: Despite a considerable interest in expanded carrier screening (ECS) in the general population, actual uptake of ECS remains low. More insights are needed to better understand the perspectives of reproductive-aged individuals.
Materials and methods: Non-pregnant women of reproductive age recruited through public pharmacies throughout Flanders (Belgium) were invited to participate in an online survey.
Results: Most participants (63.6%) indicated they would consider ECS for themselves in the future. About 1 in 2 participants showed a positive attitude towards ECS.
Conclusion: This study reports valuable insights in the perspectives of non-pregnant reproductive aged women in Flanders (Belgium) regarding ECS that can be used in the on-going debate on the responsible implementation of ECS.
Text A: Background information
Text B: Questionnaire
Text C Supplementary data:
Table 8: Sociodemographic Characteristics of participants
Table 9: Perceived susceptibility
Table 10: Acceptability & intention to participate in ECS
Table 11: Knowledge about ECS related concepts
Table 12: Attitudes towards ECS
Table 13: Preferences for the practical organization of a population-based ECS offer
