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Supplemental Tables. What works when: mapping patient and stakeholder engagement methods along the 10-step continuum framework.

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posted on 2021-06-04, 08:53 authored by Hillary A Edwards, Jennifer Huang, Liz Jansky, C. Daniel Mullins

· Supplemental Table A. CINAHL® (Cumulative Index of Nursing and Allied Health) Database Search String.

· Supplemental Table B. Patient Participant Counts for Game Board Responses.

· Supplemental Table C. Researcher Participant Counts for Game Board Responses.

· Supplemental Table D. Other Stakeholder Participant Counts for Game Board Responses.

· Supplemental Table E. Qualitative Summary – Concepts by Participant Group.


Background: This study provides a recommended “patient engagement translation table” (PETT) that identifies evidence-based methods for meaningful patient engagement along a ten-step framework for continuous engagement. Methods: We used a mixed methods research design to collect data on preferred engagement methods, including an environmental scan of available literature, interviews and focus groups with PCOR stakeholders to match methods with research steps and a modified Delphi process with subject matter experts to create the final translation table. Results: Evidence-based engagement methods included community partnerships, focus groups, interviews, meetings, sharing print materials, social media, storytelling, surveys, and including patients as research team members. Conclusions: Our recommended PETT is designed to assist investigators in determining appropriate engagement methods for meaningful interactions with stakeholders.


Patient-Centered Outcomes Research Institute (PCORI) Award (ME-1409-20792)