posted on 2021-06-04, 08:53authored byHillary A Edwards, Jennifer Huang, Liz Jansky, C. Daniel Mullins
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Supplemental Table A. CINAHL® (Cumulative Index of
Nursing and Allied Health) Database Search String.
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Supplemental Table B. Patient Participant Counts for
Game Board Responses.
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Supplemental Table C. Researcher Participant Counts
for Game Board Responses.
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Supplemental Table D. Other Stakeholder Participant
Counts for Game Board Responses.
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Supplemental Table E. Qualitative Summary – Concepts by
Participant Group.
Abstract
Background: This study provides
a recommended “patient engagement translation table” (PETT) that identifies
evidence-based methods for meaningful patient engagement along a ten-step
framework for continuous engagement. Methods:
We used a mixed methods research design to collect data on preferred engagement
methods, including an environmental scan of available literature, interviews
and focus groups with PCOR stakeholders to match methods with research steps
and a modified Delphi process with subject matter experts to create the final
translation table. Results:
Evidence-based engagement methods included community partnerships, focus
groups, interviews, meetings, sharing print materials, social media,
storytelling, surveys, and including patients as research team members. Conclusions: Our recommended PETT is
designed to assist investigators in determining appropriate engagement methods
for meaningful interactions with stakeholders.
Funding
Patient-Centered Outcomes Research Institute (PCORI) Award (ME-1409-20792)