Exploring the impact of caring for an individual with neurogenic orthostatic hypotension: a qualitative study supplementary materials

<p>Aim: This study aimed to explore the impact of caring for an individual with neurogenic orthostatic</p> <p>hypotension (nOH). Methods: Informal caregivers of individuals with nOH and either Parkinson’s disease,</p> <p>multiple system atrophy, pure autonomic failure or dementia with Lewy bodies completed semi-structured</p> <p>interviews. Data were analyzed using thematic analysis; the identified concepts were used to develop</p> <p>a conceptual model. Results: Twenty informal caregivers were interviewed. Analysis identified several</p> <p>areas of caregiver impact due to nOH including impact on their time, particularly a need to supervise</p> <p>the patient to prevent falls as well as a lack of freedom and negative physical, work and social impacts.</p> <p>Many reported negative emotional impacts, including worry, stress or fear about the patient falling,</p> <p>depression and frustration. The conceptual model shows the relationships between concepts. Conclusion:</p> <p>The results highlight the wide-ranging impact of nOH, and the specific impact of the fear of falls on</p> <p>informal caregivers’ lives.</p>